Damian Lewis is a proud patron of Sohana Research Fund and has made time for the fund several times this year that we believe collectively make some of the TOP Damian Lewis MOMENTS of the year!
Damian interviewed Dr. John McGrath, one of the leading experts in the field of Epidermolysis Bullosa (EB) research back in February. Please see their conversation below and find out about this terrible skin condition, the on-going research to find a cure, and how the funds raised by Sohana Research Fund are directly going into clinical trials that could ultimately benefit a number of patients.
Then Damian gave his time for the Fund’s Silver Butterfly Dinner Live Auction in May:
I don’t know the final bid to have that privilege… What I know is that I am so happy I was not in that room for the live auction — well, I could have bid all the money I have and had bankruptcy! 😀
Finally… I think by now you all know about EB Tongue Twister Challenge Sohana started more than a year ago telling everyone: “Please help me laugh by taking on the #EB tongue twister challenge here and help the researchers stop the pain of EB!”
Can you imagine a better way to raise awareness and funds to beat a disease than through fun and laughter? I CAN’T.
And hey see this killer tongue twister by the patron and get inspired! And wish Betty Botter good luck with making her butter better 😀
I am old enough to know that life is not fair, but I still cannot come to terms with the fact that awful conditions happen to children. EB is a VERY serious condition. There is good research being done, and it is the only thing that can bring the magic to have a world without EB. That’s why we need more research and need it NOW. The clock is ticking and we should ACT immediately to raise more awareness and funds to help find a cure for EB.There are many ways to help Sohana Research Fund about which I blogged earlier here — just pick one and get involved!
And I would love to invite all Damian Lewis fans once again today to PLAY the EB Tongue Twister! Don’t be a stranger, come join the campaign! It is guaranteed you will be in GREAT company if you took the challenge! Damian Lewis did it! Helen McCrory did it! Benedict Cumberbatch and Sienna Miller did it! Tom Hiddleston did it! Sophie Turner did it! Oh come on, even One Direction did it! Oh, yes, I also did it last year, on New Year’s Eve, to wish Sohana a Happy New Year!
It’s easy, it’s fun! Just film your EB Tongue Twister, use the hashtag #EBTongueTwister, tweet it to @SohanaResearchF and they will take very good care of it! It doesn’t matter if you are from a non-English speaking country, either; you can do your Tongue Twister in any language of your choice! In case you wimp out and want to send a donation: text OUCH10 £10 to 70070 if you are in the UK. Or, you can always securely donate anytime and anywhere on justgiving.com/sohanaresearchfund.
Please follow Sohana Research Fund at @SohanaResearchF on Twitter and visit and like their Facebook Page. See the fund’s yearly newsletter here and get informed about the latest research! Please HELP the bravest girl Damian Lewis has ever known and all butterfly kids out there to beat Epidermolysis Bullosa “Hard to say, Hell to Live with!” Thank you!
