Tag: Epidermolysis Bullosa

Let’s Give to Sohana Research Fund This Holiday Season!

Today is Giving Tuesday! It is a a global day of giving we celebrate on the Tuesday after Thanksgiving and kick off the charitable season! So it’s time to be thankful for all the good stuff in our lives and focus on our holiday giving.

Well, most of you know Damian Lewis is a proud patron of Sohana Research Fund.

Damian Lewis with Sohana and her mother Sharmila at BGC Charity Day 2014, source: Sohana Research Fund

Sohana Collins is a young teenager who was born with RDEB which means she lacks the protein that holds her skin together. Kids with RDEB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Besides, they are under extra risk to develop skin cancer later in life and their life expectancy is not very long. That is why Sohana’s parents Sharmila and James Collins founded Sohana Research Fund to raise awareness as well as funds for research to ultimately have a cure for this terrible skin condition.

Continue reading “Let’s Give to Sohana Research Fund This Holiday Season!”

Damian Lewis attends GFI Charity Day
for Sohana Research Fund

Today is the 16th anniversary of one of the darkest days in nation’s history. Nearly 3,000 people died and more than 6,000 people were wounded in the deadliest terrorist act in world history on September 11, 2001. Cantor Fitzgerald, one of the world’s premier capital markets investment banks, lost 658 of its New York employees, considerably more than any other employer in the towers, and 68% of its entire workforce on September 11.

BGC Partners and Cantor Fitzgerald, in conjunction with the Cantor Fitzgerald Relief Fund have turned the tragic anniversary of September 11 into an uplifting day of giving since 2005. They distribute 100% their global revenues on Charity Day to the Cantor Fitzgerald Fund and dozens of charities around the world to commemorate their friends and colleagues perished on September 11.

Top celebrities representing participating charities visit the trading floor on Charity Day and join licensed brokers to conduct transactions with clients.

Damian Lewis with Sohana and her mother Sharmila at BGC Charity Day 2014, source: Sohana Research Fund

Continue reading “Damian Lewis attends GFI Charity Day
for Sohana Research Fund”

POP the Balloons for Sohana Research Fund and RAISE Awareness for EB!

Damian Lewis answers the Vanity Fair Proust Questionnaire.

Vanity Fair: “Which living person do you most admire?”

Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.

Do you want to HELP the bravest girl Damian has ever known?

Sohana Collins, who gives her name to Sohana Research Fund, is a teenager who was born with recessive dystrophic epidermolysis bullosa (RDEB or EB) which means she lacks the protein that holds her skin together. Kids with EB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Continue reading “POP the Balloons for Sohana Research Fund and RAISE Awareness for EB!”

From Butterfly Brunch to Bond with
Research: NEWS From Sohana Research Fund!

Damian Lewis answers the Vanity Fair Proust Questionnaire.

Vanity Fair: “Which living person do you most admire?”

Damian Lewis: “Sohana Collins. A little girl I know who’s extremely brave.

Have you met Sohana yet?

Continue reading “From Butterfly Brunch to Bond with
Research: NEWS From Sohana Research Fund!”

Let’s Give a Hand to Sohana Research Fund for a World without EB!

source: sohanaresearchfund.org
source: sohanaresearchfund.org

You all know by now Damian Lewis is a proud patron of Sohana Research Fund.

Sohana Collins is a young teenager who was born with recessive dystrophic epidermolysis bullosa (RDEB or EB) which means she lacks the protein that holds her skin together. Kids with EB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Continue reading “Let’s Give a Hand to Sohana Research Fund for a World without EB!”