Tag: EB Awareness

Do it like Damian Lewis and Raise Awareness for EB!

You all know Damian is the proud patron of Cure EB (formerly Sohana Research Fund), a wonderful charity that works very hard to raise awareness and funds to make the world a better place for everyone living with Epidermolysis Bullosa (EB), a genetic skin blistering condition where the body lacks the protein to hold the skin together.

When we shared the name change information on Twitter a few months ago, the patron has quoted the tweet and said:

Continue reading “Do it like Damian Lewis and Raise Awareness for EB!”

Do it like Damian Lewis:
POP the Balloons for Cure EB and RAISE Awareness for EB! *UPDATED*

source: Cure EB Facebook Page

First things first.

Same wonderful charity.

Same great mission.

Same brilliant patron.

NEW NAME!

Sohana Research Fund is NOW Cure EB so everyone can find the mission in their name. They are determined more than ever to raise awareness and funds to make the world a better place for everyone living with Epidermolysis Bullosa (EB), a genetic skin blistering condition where the body lacks the protein to hold the skin together.

Continue reading “Do it like Damian Lewis:
POP the Balloons for Cure EB and RAISE Awareness for EB! *UPDATED*”