Tag: Sohana Research Fund

Let’s Give a Hand to Sohana Research Fund for a World without EB!

source: sohanaresearchfund.org
source: sohanaresearchfund.org

You all know by now Damian Lewis is a proud patron of Sohana Research Fund.

Sohana Collins is a young teenager who was born with recessive dystrophic epidermolysis bullosa (RDEB or EB) which means she lacks the protein that holds her skin together. Kids with EB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Continue reading “Let’s Give a Hand to Sohana Research Fund for a World without EB!”

Do It Like Damian Lewis: Stick Out Your Tongue at EB!

source: Sohana Research Fund
source: Sohana Research Fund

You all know by now Damian Lewis is a proud patron of Sohana Research Fund.

Sohana Collins is a young teenager who was born with recessive dystrophic epidermolysis bullosa (RDEB or EB) which means she lacks the protein that holds her skin together. Kids with EB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day. Continue reading “Do It Like Damian Lewis: Stick Out Your Tongue at EB!”

Damian in Between: Reserve Rope, Frankenstein, and WWE

In the time since Billions finished filming and we know Damian has been on break, it’s been interesting following the various projects he’s tackling back home across the pond. You hear of actors spending their series hiatuses well out of the public eye, on a beach somewhere, lounging away the days until filming starts again. Not Damian Lewis. The break from NYC and from Bobby Axelrod saw a Londoner doing London things, loving on his home town. Seems the only person to get the time off was Damian’s barber!

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Continue reading “Damian in Between: Reserve Rope, Frankenstein, and WWE”

TOP Damian Lewis Moments 2015: Sohana Research Fund

source: Sohana Research Fund
source: Sohana Research Fund

Damian Lewis is a proud patron of Sohana Research Fund and has made time for the fund several times this year that we believe collectively make some of the TOP Damian Lewis MOMENTS of the year!

Damian interviewed Dr. John McGrath, one of the leading experts in the field of Epidermolysis Bullosa (EB) research back in February. Please see their conversation below and find out about this terrible skin condition, the on-going research to find a cure, and how the funds raised by Sohana Research Fund are directly going into clinical trials that could ultimately  benefit a number of patients.

Continue reading “TOP Damian Lewis Moments 2015: Sohana Research Fund”

Make every week EB Week! There are many ways to HELP Sohana Research Fund – Pick One!

source: Sohana Research Fund
source: Sohana Research Fund

We’re past EB Awareness week, but why not make every week EB week? Because it’s time to spread the word about Sohana Research Fund, a small charity working extremely hard to spread awareness and raise funds for research to find a cure for Recessive Dystrophic Epidermolysis Bullosa (RDEB) “Hard to Say, Hell to Live with.”

Sohana is a young teenager who was born with RDEB which means she lacks the protein that holds her skin together. Kids with RDEB have extremely fragile skin that they are sometimes called “butterfly children.” Lots of activities we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouth and throat? These kids have to deal with this kind of pain every single day.  Continue reading “Make every week EB Week! There are many ways to HELP Sohana Research Fund – Pick One!”